Fryderyk ARPKD [B Rh-]
Life with kidney disease | - | Life during dialysis | - | Life after kidney transplant
Fryderyk's story
Blog
Me (foto's)
Diagnosis [en.pl.nl]
Dialysis @ home
Wasze pytania [pl]
Take Care Of Your Kidneys
Tuesday, November 22, 2011
[21] But still I can..
.. play with my friends
.. act crazy
and eat
Schnitzel
[20] PD at Home
new room
UV-lamp for sterilisation
Automated Peritoneal Dialysis (APD) system
[19] Start of Home Peritoneal dialysis
Blood test are bad, I have to start APD home every night.
I'm 17 months.
[18] Frequent hospital visits
that was a time,
when my Turtle
(catheter)
got a Blue Cape
to hold and protect.
[17] Going home!
after few very long and painful days
I've won again.
read a story from my shirt - I'm going home!
[16] Complications
I was losing blood,
felt weak and wasn't smiling those day's
[15] Painfull days
I've lost more blood,
they've looked worry for a few days.
[14] 2nd surgery - Catheter problem
They had to look inside
and
do some really painful moves
to clear the path.
[13] Catheter problem
after few weeks, my Turtle,
name that we gave to catheter
got stuck.
hospital, welcome bck!
No other problems occurred,
blood test were ok, but..
[12] Manual PD - Hospital
we pretend it was a game.
but for my parents it was a lesson
and a moment of practice
[11] Time to go home
see the little line coming out of me?
this is my catheter now.
[10] First days after surgery
after surgery I've staid at the hospital few days
those were very hot day's,
no ac, no bed for me parents.
[9] catheter - surgically inserted
I was 16 months (June 2011)
they decide to give me something more
[8] Before peritoneal dialysis
they gave me my first love on that day: football
after that nothing was the same
[7] Weekly hospital
as I've told you, they check a lot of things
but mostly they wait for:
Creatinine
and
Urea
[6] Blood pressure
I've got problems with blood pressure,
they know it.
but still they want to check it every time.
I'm not cooperating ;)
[5] Blood tests
After 2 weeks at the hospital
they let me go home!
since then I've got to
return there for unfunny blood tests..
I dont like them!
[4] Diurese
from the first day
I've could pee and breath enough,
- they said.
[3] More then a week
I was hosted on intensive care.
my parents had rare green colors those days.
[2] Fighter
all that my parents spoked, said some truly painful words.
but day's go by and I'm fighting.
[1] After C-section
Born by
C-section
on 16.02.2010
Born after 39 week, Apgar score: 7 (1 min),
Body mass: 3,1 kg
First day diurese: 1,8 ml/kg/h
Blood type:
B Rh-
Diagnosis:
Q61.1
Polycystic kidney, infantile type
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